“I felt alone”: The Importance of Social Support for Early Intervention
DOI:
https://doi.org/10.15448/1981-2582.2020.1.35476Keywords:
Early Intervention, Social support, Formal and Informal support, EcomapAbstract
When adopting an ecological perspective of Early Intervention (EI), social support became a key concept for understanding families and ways of coping with a child who is at-risk or have been diagnosed with Special Educational Needs. Research findings demonstrate that social support, personal well-being, parenting interactional styles, and child development are both conceptually and empirically related, and that variation in child development is attributable to social support and well-being more so than to family Social Economic Status. Social supports play an essential role when planning intervention with young children and their families. This article will provide an evidence based review of the concept and its importance in Early Intervention and it will present a case study to illustrate and operationalize the ideas discussed in the article.
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Affleck, G., Tennen, H., Rowe, J., Roscher, B., & Walker, L. (1989). Effects of formal support on mothers’ adaptation to the hospital-to-home transition of high-risk infants: The benefits and costs of helping. Child Development, 60, 488-501.
Agostinho, M. (2007). Ecomapa. Revista Portuguesa de Clínica Geral, 23, 327-330.
Bailey, D., Bruder, M. B., Hebbeler, K., Carta, J., Defosset, M., Greenwood, C., & Barton, L. (2006). Recommended outcomes for families of young children with disabilities. Journal of Early Intervention, 28, 227-251. https://doi.org/.1177/105381510602800401
Bailey, D. B., Nelson, L., Hebbeler, K., & Spiker, D. (2007). Modeling the impact of formal and informal supports for young children with disabilities and their families. Pediatrics, 120, e992-e1001. https://doi.org/10.1542/peds.2006-2775
Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge: Harvard University Press.
Bronfenbrenner, U. (1992). Ecological systems theory. In: VASTA, R. (Ed.), Six theories of child development: Revised formulations and current issues (pp. 187-248). Philadelphia, PA: Jessica Kingsley,
Dunst, C. J. (2000). Revisiting “Rethinking early intervention. Topics in Early Childhood Special Education, 20, 95-104. https:doi.org/10.1177/027112140002000205
Dunst, C. J. (2017). Family systems early childhood intervention. In H. Sukkar, C. J. Dunst, & J. Kirkby, (Eds.), Early childhood intervention: Working with families of young children with special needs (pp. 38-60). Abingdon, UK: Routledge.
Dunst, C.J., & Espe-Sherwindt, M. (2017). Contemporary early intervention models, research and practice for infants and toddlers with disabilities and delays. In J. M. Kauffman, D. Hallahan, & P. C. Pullen, (Eds.). Handbook of special education (2nd ed., pp. 831-849). New York: Taylor & Francis.
Dunst, C. J., Trivette, C. M., & Deal, A., G. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline Books.
Dunst, C. J., Trivette, C. M., & Jordy, W. (1997). Influences of social support on children with disabilities and their families. In M. J. Guralnick (Ed.), The effectiveness of early intervention (pp. 499-522). Baltimore, MD: Brookes.
Guralnick, M. J. (2011). Why early interventions works: A systems perspective. Infants & Young Children, 24(1), 6-28. https://doi.org/10.1097/IYC.0b013e3182002cfe
Guralnick, M. J., Hammond, M.A., Neville, B., & Connor, R.T. (2008). The relationship between sources and functions of social support and dimensions of child- and parent-related stress. Journal of Intellectual Disabilities Research, 52(12), 1138-1154.
Healy, A., Keesee, P., & Smith, B. (1989). Early services for children with special needs: Transactions for family support (2nd ed.). Baltimore, MD: Brookes.
Jung, L. A. (2012). Identificar os apoios às famílias e outros recursos. In McWilliam & Robin (Org.), Trabalhar com as famílias de crianças com Necessidades Especiais (pp 19-36). Porto: Porto Editora.
Kyzar, K. B., Turnbull, A. P., Summers, J. A., & Gómez, V. A. (2012). The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability. Research & Practice for Persons with Severe Disabilities, 37(1), 31-44.
Magalhães, L., & Pereira, A. P. (2017). Early Intervention in Autism Spectrum Disorder: Concerns and support of Portuguese mothers. Education and Training in Autism and Developmental Disabilities, 52(3), 240–251. https://doi.org/rich3/z1f-etdd/z1f-etdd/z1f00317/z1f2934d17g
Mccormick, K., Stricklin, S., Rous, B., Kohner-Coogle, M., & Nowak, T. (2005). Using Eco-mapping to understand family strengths and resources [Powerpointslides]. https://pdfs.semanticscholar.org/e7a9/d5b8752753a1777182059d1d949e0f8c3596.pdf
Mccubbin, H., Joy, C., Cauble, E., Comeau, J., Patterson, J., & Needle, R. (1980). Family stress and coping: A decade review. Journal of Marriage and Family, 42, 855-871.
Olsson, M. B., & Hwang, P. (2008). Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities. Journal of Intellectual Disability Research, 52, 1102-1113.
Patterson, J. M. (1991). Family resilience to the challenge of a child’s disability. Pediatric Annals, 20, 491-499.
Podolski, C. L., & Nigg, J. T. (2001). Parent stress and coping in relation to child ADHD severity and associated child disruptive behavior problems. Journal of Clinical Child Psychology, 30, 503-513.
Seligman, M., & Darling, R. (2009). Ordinary families, special children: A systems approach to childhood disability (3rd ed.). New York: Guilford.
Singer, G. H. S., Maul, C., Wang, M., & Ethridge, B. L. (2017). Resilience in families of children with disabilities. In J. Kauffman, D. Hallahan, & P. C. Pullen (Eds.), Handbook of special education (2nd ed., pp. 793-810). New York, NY: Routledge.
Serrano, A. M. (2003). Formal and Informal Resources among Families with young children with Special Needs in the District of Braga. Tese (Doutoramento em Estudos da Criança) – Instituto de Estudos da Criança, Universidade do Minho, Braga, 2003.
Trivette, C., M., Dunst, C. J., & Hamby, D. W. (2010). Influences of family-systems intervention practices on parent-child interactions and child development. Topics in Early Childhood Special Education, 30(1), 3-19. https://doi.org/.1177/0271121410364250
Turnbull, A., Turnbull, R., Erwin, E. J., & Soodak, L. C. (2006). Families, professionals, and exceptionality (5th ed.). Upper Saddle River, NJ: Pearson.
Vanegas, S. B., & Abdelrahim, R. (2016). Characterizing the systems of support for families of children with disabilities: A review of the literature. Journal of Family Social Work, 19(4), 286-327. https://doi.org/10.1080/10522158.2016.1218399
Woodman, A.C. (2014). Trajectories of stress among parents of children with disabilities: A dyadic analysis. Family Relations, 63, 39-54. https//doi.org/10.1111/fare.12049
Workgroup on Principles and Practices in Natural Environments, OSEP TA Community of Practice: Part C Settings. (2008, March). Agreed upon mission and key principles for providing early intervention services in natural environments. http://ectacenter.org/~pdfs/topics/families/Finalmissionandprinciples3_11_08.pdf
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