Can you hear me? - Accessing the voice of the child with Autism and their parent

Palavras-chave: Engagement, Autism, Child and Parent voice.

Resumo

The aim of this paper is to access the voices of children with Autism Spectrum Disorders and their parents. This paper engages with philosophical conceptual frameworks exploring concepts of movement and engagement in eliciting child and parent voice. Qualitative, longitudinal case studies were conducted. Semi-structured interviews [n=83] were conducted with stakeholders including parents. Children with and without the label of Autism engaged in interventions drawing on the Creative Arts. Living autoethnography was considered a methodological tenet, establishing connectivity between life and research, self and others, providing a window through which the internal world of the parent was interpreted and understood. This research enabled children and parents to explore their worlds and deliberate on areas that affected their lives. The potential value for using the Creative Arts as a means of engaging children with Autism is discussed. Implications relating to movement [literal and metaphoric] and engagement are explored.

***Você pode me ouvir? - Acessando a voz da criança com Autismo e seus pais***

O objetivo deste artigo é acessar as vozes de crianças com Transtorno do Espectro Autista (TEA) e de seus pais. Este artigo aborda estruturas conceituais filosóficas que exploram conceitos de movimento e engajamento como forma de dar voz a crianças e pais. Estudos de caso qualitativos e longitudinais foram conduzidos. Entrevistas semiestruturadas [n = 83] foram realizadas com as partes interessadas, incluindo os pais. Crianças com e sem o diagnóstico de TEA envolveram-se em intervenções baseadas nas Artes Criativas. A autoetnografia viva foi considerada um princípio metodológico, estabelecendo conectividade entre a vida e a pesquisa, o eu e os outros, fornecendo uma janela através da qual o mundo interno dos pais foi interpretado e compreendido. Esta pesquisa permitiu que crianças e pais explorassem seus mundos e deliberassem sobre as áreas que afetaram suas vidas. O valor potencial do uso das Artes Criativas como meio de envolver as crianças com Autismo é discutido. Implicações relacionadas ao movimento [literal e metafórico] e engajamento são exploradas.

Palavras-chave: Engajamento; Crianças com Autismo, Voz da criança; Voz dos pais; Inclusão, Movimento; Imitação; Teatro de Fantoches

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Biografia do Autor

Miriam Twomey, Trinity College (TC), Dublin, Ireland. School of Education, IES (D.Ed.), Dublin

Miriam has a background in teaching and research in the fields of Early Intervention, Autism Spectrum Disorders and Intellectual and Developmental disabilities. Miriam completed her M. Litt and Doctoral Degrees at the School of Education, Trinity College Dublin and has worked as a Post Doctoral research associate, lecturer and research supervisor there. Miriam holds the position of Assistant Professor in Early Intervention at the Centre for People with Intellectual Disabilities (TCPID), at the School of Education, Trinity College Dublin. Miriam is leading the Masters in Education [Early Intervention] which is designed to provide post graduate level study for those who wish to develop or enhance knowledge and experience working with young children with disabilities or at risk of developing additional needs and/or Special Educational Needs (SEN) in the 0-6 age group.

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Publicado
2020-05-25
Como Citar
Twomey, M. (2020). Can you hear me? - Accessing the voice of the child with Autism and their parent. Educação, 43(1), e35477. https://doi.org/10.15448/1981-2582.2020.1.35477
Seção
Dossiê - Intervenção Precoce na Infância centrada na Família: práticas e pesquisa